Finally some good news!
Oliver had an EEG last week to determine if he is having any seizures, which is very common with what Oliver has. His EEG results came back with normal results and so far no seizures. Of course they can start later, but for now we are clear! It was so nice to get good news. The doc is still confident his vision will develop slowly so we are holding onto that. It does seem as though he is tracking a bit more and reaching for toys!! Amazing how excited we get for the smallest things, I think we under celebrated them with Adina.
We are still waiting on the blood results that will tell us if there are any syndromes associated with Oliver's ACC (agenesis of corpus collasum). Often times there are, but not always. Hopefully it will be more good news. We will let you know when we find out, but be patient (grandma) as it may take a few weeks =).
We have an appointment Wednesday to set up therapies and also that day, an appointment with a GI specialist. Oliver has GERD on top of the other stuff, I feel as though this is all never ending.
Today the doctor gave us some new medication to help Oliver sleep (mommy and daddy too). We only get a few hours a night and usually in a rocking chair, hopefully this will help. Our nights are like having a colicky newborn baby who screams for hours, now take that times 10. I guess this is also common with his diagnosis. We are about to try the meds! Wish us luck!
We will update you with news. Happy sleeping, I hope!
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4 comments:
That will be wonderful if he and the two of you can get some sleep. That is so important!!!!
I'm glad to hear he has not had any seizures.
Thank you for posting on a blog. I was wondering how things went yesterday.
Much love, Mary
Thanks for the note Mary =) You are right, sleep is important and GREAT! Oliver was only awake for 2 hours last night from 2-4am. Much better!
Thanks for the update. People are praying like crazy for you guys. Please know that you are loved and cared for. Let me know if there's anything I can do for you. In the meantime, love and prayers for you all!
Kimberly
Thanks Pastor Kimberly, that really really means a lot!
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