Eye Doc.

Two hour appointment at the eye doctor felt more like 24 hours. They had to dilate him and he, like most people, did not like that. He is so SO sensitive to light that every time she would try and look in his eyes he would close them so tight. So they had to tie him down and force his eyes open. Having to watch the poor little guy get strapped down twice in one day can be really hard, but I know they have to do it.

Anyway, not much new at the eye doc. He is fixating a little bit more than last time, but she said it is nothing that glasses would fix. She is sending us to the U of M to a Ped. Opthamologist that specializes in genetic disorders--yes, another genetic doctor. She is thinking since he is so light sensitive that he might have issues with his rods and cones in his eyes, again, much more testing to come. Today was, I think one of my hardest days, our hardest. We have been through so many tests and I feel like there are still no answers. Just, "go to the next doctor."

I wanted to give up on all of the appointments more than ever today. Then his eye doctor called at 8:30 tonight, (yes, 8:30 PM) and said she finally got ahold of the U and hopefully we will get in by March. When I see how much our doctors want to figure this out and realize how committed they are, it helps. So, like the many posts before, nothing new. Every doctor right now is waiting on the results from the re-eval of the MRI by the ped. neuro. radiology specialist. (Say that five times fast!) Maybe then we will get some answers? I better not hold my breath! So today was a junk day that I am going to repress and throw away, give it to God, or anyone else who is willing to take it!