Another Busy Monday

Oliver is going to have a 3D CT today of his head, Monday the 9th. We had his nine month check-up Friday and she(Oliver's family doc who is the best!) could not feel his soft spots. We called into his neurologist and he told us to get right in for the scan. Sometimes when they can't feel the soft spot the concern is that they fused too soon. Then when the brain tries to grow the skull will not grow to accomodate. He did not seem super worried about Oliver's head not growing at all because he said this is part of ACC. One specialist thinks it is no big deal while the other thinks it is bad news, oh what to think. Also, Oliver has an eye doctor appointment tomorrow. We always look forward to these. This time I am going a little bit more optimistic that he can see. It seems that sometimes he will focus, I hope it is good news. They will dilate his eyes, he really loves that. They also said we should know about the scan tomorrow, although I am not going to hold my breath on that one. I will update this as soon as we know. If it is fused it will mean surgery to open those spots up.
Send good thoughts and prayers Oliver's way, I know that everybody already does and once again we thank you.
Love, Us

Part 2- Monday
We were already at Children's today and we have to reschedule. Oliver would not keep still even strapped down. So we have to go back for sedation, nothing is ever easy. I am currently on hold right now, story of my life. So I know many of you were waiting for the results but it will be more time. Sorry. It's so frustrating, we will go back to the exact same place, with the same people, but because it is sedation we need to totally reschedule. I told them we sedate him every night for him to sleep, I told them if they give me the meds and turn their backs I will do it! Didn't work, and yes I went to my car and had a good cry for no good reason at all, frustration I guess. Maybe the eye doctor will go better although the way it has been going, if one appt. starts out bad the rest follow. Okay, just scheduled. Next Wednesday the 18th and because it is sedation we have to go to our family doctor again to have a history and physical, even though we just had one a few days ago. It's only 9:30 yet I feel it has been a full day! Hope the rest of you have a better Monday.