The time is going so fast. The more kids we add the faster time goes! Life is good here, Coraline is now three months old. She was baptized at Luther Seminary. We had a private baptism with close friends and family and Aunt Mary did a beautiful ceremony. The day was perfect. She is growing fast and is really trying hard to roll over. Adina tried to give her away to her aunt and uncle last week, but most of the time she still likes her! Oliver continues to laugh when Coraline is crying.
Adina is counting the days down until she turns four. Her Golden Birthday! She has invited just about everybody to her party, even a bunch of random people we don't know!
We moved again! We have to keep up our yearly tradition of moving. We are in a duplex and it is perfect for us. We have privacy and quiet. Also, central air which Oliver needs more than ever right now. Oliver is having a difficult time regulating his temperature. When he gets too hot he spikes a fever and when it is a little too chilly his temp drops. We saw an endocrinologist and he said it is most likely hormones being out of whack. Another round of tests to come. The part of Oli's brain that is missing is right in the middle of the brain. This is also where the pituitary gland is which controls some very important hormones. There is a concern that perhaps his pit. gland is not functioning right since this is where the brain malformation is. Oliver has not grown in over 6 months in height or weight and this is also indicative of hormones maybe not in balance. He is having a sleep study in September. Because his oxygen levels drop constantly and he has required much more oxygen use. Oh yes, he is also still not sleeping past 10 or 11pm regardless of the adult dose of sleeping meds. He will spend a night at Gillette Hospital hooked up to a whole lotta stuff. There are many possibilities that may come of this. Surgery, more oxygen use, a CPAP machine, more meds, etc. We will let you know. We have also applied for more nursing hours. We looked at the states tool for determining hours and Oliver SHOULD be getting 70 hrs a week. He gets 35 hours. The people that makes these decisions suck. Especially when we hear of others getting more hours and having fewer issues than Oliver. This makes them (state workers) suck more. Also, I question why Gov. Tim Pawleny(T.paw. as John calls him. I call him something else) turns down money for health care but will spend millions on buying land for a state park. Things like this affect ours and many other disabled children and adults nursing hours. Not to get too political, but John and I get very upset by news like this. We will most likely be rejected for more nursing hours the first few times, but we will fight it!
Oliver continues to bring joy to our lives everyday. We hate getting pity from people like our life is tragic. We are happy, Oliver is happy, Coraline and Adina are happy.
We will let you know how the future tests go. Oliver is so strong! He is the strongest little man I know!!
Adina starts preschool next week and is so excited! She and the other kids at school will be getting their backpacks blessed and ready to go next Sunday.
Cora's beautiful baptism gown made by Grandma Hanson. A talent that unfortunately did not pass through the genes! We love it mom!!
The Klawiters
The Hansons
Kali Rose saying hi to Oli Bear.
Coraline's Godparents, same as mine. Mike and Vicki (Vicki Mouse is what Adina has named her.)
Family Pic.
Chillin in the bouncers.
No more monkeys!! Taking a break from moving for a little bouncing fun. You're never really too old to jump on the bed!!
John all dressed up for his first day preaching at his internship site. He has preached a bunch already, but this was his first time in his clergy collar.
Adina playing dress up with Cora.
Looks like John passed down his dancing genes to Adina.
Oliver loves Raspberries!
