Oliver turns two on May 1st!! I can't believe my little guy is two, or maybe I can't believe we have made it through two years!! Guess it depends on the day. We had a small party for Oliver on Saturday. John and I were both anticipating the worst as Oliver does not really like a lot of stuff going on. He did end up having seizures at the end of the party and has been having them since. It just reinforces our feelings that from now on his parties will be just the four (soon five) of us. Not that we don't love celebrating with others, but it is Oliver's Birthday and a gift we do not need to give him is a seizure. He was in the ER last week for a quick visit, he has been biting his hands so bad that his hand was swollen twice the size it should have been. We got restraints so he would not be able to bite, yes, he loved them!! We also went to see another of his many docs who is following up with other docs from around the country about Oliver. Apparently some of his genetic tests have rarely or never been seen, so many are interested. They have banked some of his blood to do more tests in the future. This way we don't have to keep going in for random blood draws. There was much more from this doctor, but it would be a short novel if I wrote it all. She does feel we need to see a sleep specialist for Oliver. His sleeping situation continues to worsen. Five out of seven nights he will only sleep for about three hours and not nap the following day. Not sure how he does it really.
After Oliver's party there were some perfect mud puddles. Mine and Adina's favorite thing to do after the rain is jump in puddles of course! Nothing better than getting all muddy and messy. It is also fun to explore after the rain. Adina has been coming with to Oliver's therapy appointments at Gillette Hospital. I like having her there because she sees so many other kids in wheelchairs and their siblings. Today she went up to a little girl and said, "Hey, you have a really neat wheelchair." When we walked away she asked if she could get one like it! She also got to see one of the therapy dogs, Adina LOVES these dogs. Adina's newest career's in the, "When I grow up" game is a duck, teacher, piano player, rhino, piano (yes, the actual instrument), and a french fry maker at McDonald's. I told her whatever makes her little heart happy. That is what life is all about, happiness!!
Oliver finally crashed hard after his seizures. When he has seizures he sleeps like this everywhere. This is right after I changed is outfit, diaper, and fed him. He slept through it all!
YES!! Look at all this mud! We had to pour the water out of her boots after this.
Jump...
Jump..
Love the hair!
Snuggle time with daddy!
Birthday Cakes. Adina helped add the sprinkles. Clearly we are master decorators!
Opening the squeaky toys from Adina.
Adina loves to help her brother.
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