Here we go..

Oliver is having the surgery for the placement of the Trach Monday the 31st. We are happy with our decision because we see that it will be a benefit for Oliver and it will improve his quality of life. He does have some issues with his airway closing so we do a jaw thrust and he is okay. The trach will just keep the airway open. It seems as though Oliver is declining, but we don't focus on that and ask that nobody else does either. He is still Oli first, equipment last. He could plateau for years and be our dude, or things could move faster (and he would still be our dude). We don't know, just like nobody knows when their time will be. Oliver will be at Children's St. Paul in the PICU. We can't have children in for visitors and I think adults will be limited. Please call if you want to see Oli. I will do my absolute best to update the blog with how Oliver is doing. There is a chance that we would get there and they would say he is not ready for the surgery because he does have a cough. I hope not because he has had a cough for a long time. If he has a fever it is for sure off. There is also a chance that they could do a surgery to open the airway more instead of doing the trach, but eventually they would need to do a trach. We got Oli a new shirt with Popeye on it that says, "I yam what I yam!" He is such a dude. So, thats it. Here we go..