Wednesday, December 1, 2010

Surgery

Oliver is having surgery December 3rd at the U of M Amplatz Childrens Hospital. Not my favorite place but they don't do this surgery on little kiddos at Gillette. He is having a Nissen Fundoplication and an ERG (electroretinogram). We will be there for about 2-3 days unless there are complications. Oliver has been feeling really good the last month. He has been throwing up a lot more, that is why he will be having the Nissen. Since he will be sedated I called and ask that they examine his eyes really well. He does not like it when he is awake so he has never really had the best eye exam. The ERG hopefully gives us more information about Olivers eyes. I will be with Oliver during the day and John at night. We kind of have a routine with hospital stays now. We are waiting to hear about more nursing hours. Story of our lives. He was bumped up to 8 hours a day, now that he is on high flow oxygen and having more seizures he qualifies for 16-20 hours. We started having two new nurses alternate Sunday shifts so I could take the girls to church. The first Sunday I received a call at church asking me to come home. She quit after one shift. Oliver was not breathing well, supposedly seizing, and just pissed at the world.
The girls are doing well. Adina is still loving school. Cora has two teeth and loves blowing spit bubbles. Life is good!
The doctors are pretty sure that Oli has a Mitochondrial disorder. They are testing but who knows. He is our Mystery man and he is strong. We have tons to be Thankful for, three awesome kids who love each other and are super loved by us.
Peace~

Kimono cutie. Dressing up at the Childrens Museum.



Two cuties, one not so happy.


Decorating the tree


Cousin time with the greats


JUMP


Adina making her Lefse



Adinas Lefse, rolled out all by her. Cutest little piece of Lefse.

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