I know I said I would post while we were at the hospital, but they did not allow that website to be opened from their network so I will fill you in now. Oliver had the surgery Tuesday and it went very quickly and he did great. There was no damage from all of the throwing up he has been doing and that was an added bonus. It was hard to sit and watch all of the parents coming and going, many in tears, the rest were either very nervous looking, parents that go through this often and it is just another surgery, and some that have probably been crying for days and are now lost in the fog of emotions. On the other hand, it was nice to be around parents who were going through something similiar.
The first night post-op was not good at all. We shared a room with another baby, 5 months old. Oliver and this young boy, throughout the entire stay would either have coo-offs, cry-offs, sympathy beep time (taking turns setting off the alarms), or the dreaded beep war (If you beep I will beep too!). We did not sleep the first night at all. The morphine was not working for Oliver and he was totally on sensory over load. The next day we tried feedings, but Oliver could not tolerate them. He had a spike in heart rate and his oxygen saturation level was dropping until finally they had to put a tube down his throat momentarily. Not fun to watch. We made it through. We were at the hospital one day longer than anticipated, which was best for little man. Our new GI doc is great and very experienced with special needs children.
We are home now, and slowly taking the feedings. I have to go and set up our first night tube feeding! Wish us luck! Oliver continues to amaze us, he is so strong. Adina was also relieved to have us home, although she did enjoy the many toys at the Children's hospital.
Friday, January 9, 2009
Sunday, January 4, 2009
A New Skill and Some Nerves
Oliver has his surgery this week on Tuesday at 1:30. It is very quick, less than an hour if all goes well. They will also be doing a bit of investigation to make sure there has been no damage to his esophagus from all of the reflux Oliver has had. We are excited to have this over with and hope that it will make feeding a less time consuming / frustrating event. Tonight the wave of emotions once again returned thinking about yet another medical procedure Oliver has to go through. Soon it will just be a memory and we will be thankful I am sure.
Christmas was great and we were able to see family and get a little rest here and there. I have some great pictures and will add them at some point. We have been having some computer problems, every time I try and download pictures our computer just poops out.
The big news in the Klawiter house is that Oliver figured out how to put his fist in his mouth!!!!! A small but extremely large milestone that I am sure we took for granted when Adina did the same thing. We cheer every time he does it! A few more... We took a car ride to the doctor in which Oliver was awake for the entire ride and did not scream! He is usually either asleep or awake and screaming. He was also awake on the way to church today and was just talking. When the music would play at church today, Oliver cooed along when the music would start, and last but certainly not least, he had tummy time today and yesterday for five minutes with out screaming. These may seem like non events but in our world we celebrate these moments!! After our celebration and sometimes tears of joy we say "I can't wait to tell Susan." She is Oliver's Occupational Therapist and is the best of the best.
I will update as I can during the hospital stay. Have a great week getting back in the swing of things after the busy holiday!
Peace
Christmas was great and we were able to see family and get a little rest here and there. I have some great pictures and will add them at some point. We have been having some computer problems, every time I try and download pictures our computer just poops out.
The big news in the Klawiter house is that Oliver figured out how to put his fist in his mouth!!!!! A small but extremely large milestone that I am sure we took for granted when Adina did the same thing. We cheer every time he does it! A few more... We took a car ride to the doctor in which Oliver was awake for the entire ride and did not scream! He is usually either asleep or awake and screaming. He was also awake on the way to church today and was just talking. When the music would play at church today, Oliver cooed along when the music would start, and last but certainly not least, he had tummy time today and yesterday for five minutes with out screaming. These may seem like non events but in our world we celebrate these moments!! After our celebration and sometimes tears of joy we say "I can't wait to tell Susan." She is Oliver's Occupational Therapist and is the best of the best.
I will update as I can during the hospital stay. Have a great week getting back in the swing of things after the busy holiday!
Peace
Monday, December 22, 2008
Santa is coming!!
Adina was so excited because Santa was coming to the building and she was going to sit on his lap and tell him everything she wanted. Here is a play by play of how it went down...
1. My pretty dress is on to see Santa!
2. Let's Go!!!!
3.Whoa! There is Santa!
4. I am going to stay with daddy, but why is he getting so close!
Okay, I will sit in Santa's lap............
GET ME OUTTA HERE!!!!
Whew, at least he gave me some candy..
The next day Adina was telling me all about Santa and claimed she was not scared at all!
1. My pretty dress is on to see Santa!
2. Let's Go!!!!
3.Whoa! There is Santa!
4. I am going to stay with daddy, but why is he getting so close!
Okay, I will sit in Santa's lap............
GET ME OUTTA HERE!!!!
Whew, at least he gave me some candy..
The next day Adina was telling me all about Santa and claimed she was not scared at all!
Saturday, December 6, 2008
Happy Thanksgiving, a little late!
Happy Thanksgiving Everybody. I thought it was finally my turn to write a little on the blog and give some updates. School is going well for both of us, but we are definitely ready for our Christmas break. With all of our doctor appointments plus the added school work it will be nice to sit back and watch movies for a few weeks instead of sitting in front of the computer. We don't have any pictures of Thanksgiving Day, we were a little lazy with the camera, but we had a nice day. We had originally planned on going to Owatonna for the day but my dad took a much needed vacation to California to see my grandparents. So instead we stayed in the cities and brought some food to Scott and Kara's and celebrated with Taryn's side of the family. Our new niece Kali slept through it all!
Taryn's folks stayed with us since Kali was baptised that following Sunday and we took advantage of the babysitting. We took Adina to the Como Zoo and put up the tree. Oliver could definitely see the Christmas lights, we might have to keep our tree up all year! We were sponsors for the baptism and I got to preach for the first time--it went well and I had a lot of fun.
Not many new updates as far as doctor visits go. Oliver had his six month appointment (one month late)--shots!!! He is gaining weight and getting taller but his head has not grown at all in three months. We were not shocked as the neurologist told us this would be the case, but we had a little hope of some growth. We are going to see a new GI doctor in a few weeks and are still waiting for all of the genetic tests to come back. It is all a waiting game. We will continue to post updates. Here are some pictures of the zoo and Oliver looking at the tree. Also, Taryn blowing out candles on her birthday Cheese Cake that I spent hours preparing from the box!
Taryn's folks stayed with us since Kali was baptised that following Sunday and we took advantage of the babysitting. We took Adina to the Como Zoo and put up the tree. Oliver could definitely see the Christmas lights, we might have to keep our tree up all year! We were sponsors for the baptism and I got to preach for the first time--it went well and I had a lot of fun.
Not many new updates as far as doctor visits go. Oliver had his six month appointment (one month late)--shots!!! He is gaining weight and getting taller but his head has not grown at all in three months. We were not shocked as the neurologist told us this would be the case, but we had a little hope of some growth. We are going to see a new GI doctor in a few weeks and are still waiting for all of the genetic tests to come back. It is all a waiting game. We will continue to post updates. Here are some pictures of the zoo and Oliver looking at the tree. Also, Taryn blowing out candles on her birthday Cheese Cake that I spent hours preparing from the box!
Monday, December 1, 2008
Dancing
We went to a wedding in November and Adina had a blast! We thought she would be too shy to dance, we were very wrong! She was out there with a few others her age having a blast! Also, here are some pictures of Adina snuggling with her brother and an after the bath wardrobe.
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