Time to Go Home

Oli's surgery went well today and the port is placed. He is in a lot of pain and as usual pain management is always a challenge with Oliver. We had a pulmonologist come in today, not our normal doc but a very honest, blunt, to the point doctor. My favorite kind. He basically said that the meds we are giving to help him breathe are not going to work anymore. The best thing that we can do for Oliver right now is to keep him mildly sedated so his airway can relax and he is comfortable. Olivers tummy is not tolerating even pedialyte and he is again becoming puffy. The doctor said it is time for Oliver to be home with us and around his sisters so they can get lots of snuggle time with him. Everything now can be managed at home. We have a conference tomorrow with the hospice team and our nurses so everyone is on the same page. We had a little bump today trying to get Hospice covered. The reason.. they decided that Oliver isn't disabled because they didn't have it in the paperwork! I laughed when the social worker told me. What else could I do, it was either laugh, cry, or swear! I made some calls, he is now disabled again. Prayers would be great at about 10 tomorrow morning that John and I make it through. I know we have some big decisions to make that I would just love to run away from. It's time for Oli to come home with us now so we can love him up BIG time. Thanks for the prayers and love and support.